Unlocking Patient Data
Pulling the Linchpin of Data Exchange and Patient Empowerment
Access to information and the ability to integrate and use information has changed how individuals book travel, find information about prices and products and compare and review services. Information can empower individuals, but healthcare has lagged other service sectors. In 1996, HIPAA gave patients a right to a copy of their health information maintained by hospitals, physician offices and (later) laboratories. In 2018, patients still struggle to leverage this right guaranteed by law.
From HIPAA to the HITECH Act to the 21st Century Cures Act, Congress has prioritized improved patient data access as a key lever to improve care, enable research, and empower patients to live healthy lifestyles. But enacting these policies into regulations has proven more difficult than Congress imagined. This panel discussion will discuss how various federal policies are impacting patients’ ability to access and leverage their data and explore various ideas to modernize HIPAA.
Join the American Medical Informatics Association (AMIA) and the American Health Information Management Association (AHIMA) in a panel discussion to discuss how various federal policies are impacting patients’ ability to access and leverage their health data. And learn how recent policies from the Centers for Medicare & Medicaid Services and the Office of the National Coordinator for Health IT may better deliver on the promises made by Congress more than 20 years ago.Click here for a Congressional Issue Brief outlining key legislative actions related to Individuals' Right of Access.
Read the joint AMIA / AHIMA press release, "HIPAA Modernization Needed, Experts Say"
For access to the presentation slides, click here.
About AMIA & AHIMA
Who Are We?
AMIA is the professional home for more than 5,500 informatics professionals, representing researchers, front-line clinicians, public health experts, and educators who bring meaning to data, manage information, and generate new knowledge across the health and research enterprise.
AHIMA represents more than 103,000 health information professionals in the United States and around the world. AHIMA’s credentialed and certified HIM members can be found in more than 40 different employer settings in 120 different job functions—consistently ensuring that health information is accurate, timely, complete, and available to patients and clinicians.
Expert Panel
Click each panelist's title for their biography
Trent Rosenbloom, MD, MPH, FACMI
Recommendations to Improve Individuals' Health Data Access
Joint Recommendations to Modernize HIPAA
Patient Data Policy Resources
Key policy resources for policymakers and consumers
American Medical Informatics Association
American Health Information Management Association
American Health Information Management Association
National Partnership for Women & Families
National Partnership for Women & Families
American Medical Informatics Association
Other Policy Resources
Download these Other AMIA & AHIMA Policy Resources Below
Crossing the Health IT Chasm
A 2017 JAMIA paper detailing ways that policymakers should focus on liberating data for patients, improving interoperability for clinicians, and enhancing the capacity for research and innovation to impact patient care.
Redefining Our Picture of Health - An AMIA White Paper
A 2017 AMIA white paper details a new set of policy principles and framework meant to address cross-cutting issues identified by AMIA Policy Invitational participants and to encourage a more unified care, research, wellness, and community ecosystem.
AMIA Comments to ONC's Cures NPRM
AMIA's Washington Download
Your bi-weekly source for health informatics policy news and information from around the Beltway, covering action from the Hill, the Administration and important AMIA collaborators.
AMIA (http://www.amia.org) is a 501(c)(3) non-profit dedicated to supporting more than 5,500 informatics professionals, representing frontline clinicians, researchers, public health experts, and educators who bring meaning to data, manage information, and generate new knowledge across the clinical research and healthcare enterprise.
AHIMA (www.ahima.org) represents more than 103,000 health information professionals in the United States and around the world. AHIMA’s credentialed and certified HIM members can be found in more than 40 different employer settings in 120 different job functions—consistently ensuring that health information is accurate, timely, complete, and available to patients and clinicians.
© 2018