Unlocking Patient Data
Pulling the Linchpin of Data Exchange and Patient Empowerment
Access to information and the ability to integrate and use information has changed how individuals book travel, find information about prices and products and compare and review services. Information can empower individuals, but healthcare has lagged other service sectors. In 1996, HIPAA gave patients a right to a copy of their health information maintained by hospitals, physician offices and (later) laboratories. In 2018, patients still struggle to leverage this right guaranteed by law.
From HIPAA to the HITECH Act to the 21st Century Cures Act, Congress has prioritized improved patient data access as a key lever to improve care, enable research, and empower patients to live healthy lifestyles. But enacting these policies into regulations has proven more difficult than Congress imagined. This panel discussion will discuss how various federal policies are impacting patients’ ability to access and leverage their data and explore various ideas to modernize HIPAA.
Join the American Medical Informatics Association (AMIA) and the American Health Information Management Association (AHIMA) in a panel discussion to discuss how various federal policies are impacting patients’ ability to access and leverage their health data. And learn how recent policies from the Centers for Medicare & Medicaid Services and the Office of the National Coordinator for Health IT may better deliver on the promises made by Congress more than 20 years ago.
Click here for a Congressional Issue Brief outlining key legislative actions related to Individuals' Right of Access.
Read the joint AMIA / AHIMA press release, "HIPAA Modernization Needed, Experts Say"
For access to the presentation slides, click here.
About AMIA & AHIMA
Who Are We?
AMIA is the professional home for more than 5,500 informatics professionals, representing researchers, front-line clinicians, public health experts, and educators who bring meaning to data, manage information, and generate new knowledge across the health and research enterprise.
AHIMA represents more than 103,000 health information professionals in the United States and around the world. AHIMA’s credentialed and certified HIM members can be found in more than 40 different employer settings in 120 different job functions—consistently ensuring that health information is accurate, timely, complete, and available to patients and clinicians.
Patient Data Policy Resources
Key policy resources for policymakers and consumers
American Health Information Management Association