Pulling the Linchpin of Data Exchange and Patient Empowerment
Access to information and the ability to integrate and use information has changed how individuals book travel, find information about prices and products and compare and review services. Information can empower individuals, but healthcare has lagged other service sectors. In 1996, HIPAA gave patients a right to a copy of their health information maintained by hospitals, physician offices and (later) laboratories. In 2018, patients still struggle to leverage this right guaranteed by law.
From HIPAA to the HITECH Act to the 21st Century Cures Act, Congress has prioritized improved patient data access as a key lever to improve care, enable research, and empower patients to live healthy lifestyles. But enacting these policies into regulations has proven more difficult than Congress imagined. This panel discussion will discuss how various federal policies are impacting patients’ ability to access and leverage their data and explore various ideas to modernize HIPAA.
Join the American Medical Informatics Association (AMIA) and the American Health Information Management Association (AHIMA) in a panel discussion to discuss how various federal policies are impacting patients’ ability to access and leverage their health data. And learn how recent policies from the Centers for Medicare & Medicaid Services and the Office of the National Coordinator for Health IT may better deliver on the promises made by Congress more than 20 years ago.
Click here for a Congressional Issue Brief outlining key legislative actions related to Individuals' Right of Access.
Read the joint AMIA / AHIMA press release, "HIPAA Modernization Needed, Experts Say"
For access to the presentation slides, click here.
